Rare diseases are defined by the only criterion – their rarity: every rare disease affects less than 1 in 2,000 people. However, there is a great heterogeneity behind this name - rare diseases affect any organ or tissue at any age, and about 8,000 rare diseases are currently known. Therefore, all physicians, nurses and other health care workers will confront them in their clinical practice.
On October 6, 2021, we will discuss about the needs and challenges of rare disease education and training: what should every medical student, resident, future nurse know about rare diseases? What knowledge and skills do we need to acquire for to be able to diagnose these diseases in a timely manner, to provide appropriate treatments and to ensure quality long-term care? What knowledge does a general practitioner and nurse need, and what is required for a specialist? What is the role of patient education and empowerment?
We invite you to join AMSE2021 Satellite Workshop RARE DISEASE EDUCATION IN EUROPE: time for a change and express your opinion: every voice is important!
Registration and Programme: https://amse2021.mailerpage.com/satellite-workshop